Young Peoples Opinions and Expectations of Epilepsies Clinics

Young Peoples Opinions and Expectations of Epilepsies Clinics

Young Peoples Opinions and Expectations of Epilepsies Clinics
Katy Smith , Berni Waldron2, Catie Picton2, Christine Hayes3, Colin Dunkley4, Jane Williams5, Judith Lanfear6, William P Whitehouse1;
School of Human Development, University of Nottingham; 2Dept. of Paediatrics, Nottingham University Hospital, 3Dept. of Neurology,
Nottingham University Hospital, 4Dept. of General Paediatrics, Kings Mill Hospital, Mansfield; 5Paediatric Neurodisability, Nottingham
University Hospital; 6University of Leeds; UK


Specialist teenage epilepsies clinics play
an important role in catering for the
specific needs of adolescents with
epilepsies. This study aimed to ascertain
the opinions and expectations of young
people with epilepsies, attending
hospital, as out-patients.
Two questionnaires were administered
to as many of the young people who
attend the clinic in Nottingham as was
Young Persons Impact of Epilepsy scale 1
Evaluating the impact of epilepsies on
different life areas and leading to a
impact of epilepsy score
Compared between genders, age
low and high seizure frequencies, and
and post clinic attendance groups
Teenage Views on Outpatient Clinics and
Seizure Knowledge
Enquired about patients preferences
regarding the format of a clinic,
positive and
negative features and their information

74 young people aged 12-18 years
the Impact questionnaire
82 young people completed the
views questionnaire

35% of patients indicated epilepsy and
its treatment had a significant impact on
their life in general (total impact score
Higher impact scores were associated
-previous clinic attendance - increasing
-female gender - high seizure frequency
Previous clinic attendance significantly
associated with higher impact in areas of:
- hobbies and interests (p= 0.011)
- overall health (p= 0.012)
- peer relationships (p=0.032)
There were no significant differences
between those who had and those who
hadnt attended clinic before regarding:
- opinion of medical care
- understanding of epilepsy
- knowledge of seizure type
- knowledge of medication
- knowledge of epilepsy
But a study with higher power is required

The preferred mediums of receiving
information were: through nurses (69%),
doctors (57%), leaflets (55%) and the
internet (49%). A need for information in
the following areas was indicated:

% Indicated









Sex and Relationships




Seizure Types


Medication and Side Effects


Alcohol and Drugs


Mood and Behaviour


Risk and Safety


Young people with epilepsies have
expectations regarding their medical care.
The Young Persons Seizure Clinic in
Nottingham provides an setting where we
can work to fulfil these. We are collecting
further data from young people to increase
the power of the study to identify
significant effects of attending the clinic.
1. Lanfear JH, Baker GA. Young Persons Impact
Scale. Cited in young people with epilepsy:
perception, attitudes and impact. Epilepsia 1995:
40; S2; 295.

Recently Viewed Presentations

  • New Directions in Quantitative Finance

    New Directions in Quantitative Finance

    Canada Research Chair in Quantitative Finance, Western University Canada ... let Split integral to get Moving towards Bellman's equation Standard Taylor Series arguments Employ Ito's lemma to obtain Taylor series Eliminate all higher order terms and simplify Take expectations and...
  • Establishing a mentorship scheme for Career Development PhD ...

    Establishing a mentorship scheme for Career Development PhD ...

    Mentorship scheme for Career Development PhD students is in part a pilot for a more widespread local BMS EdTA scheme (in collaboration with IAD) Registered participants (vocational PhD students, interested tutors & demonstrators, postdocs, lecturers) would be allocated to ....

    Prereqs: Equivalents of Math 124/125/126, one of: Math 307/308 or AMATH 351/352, CSE 142/143. All transfer credits need to be sent to the UW and need to be evaluated prior to applying to major. Highly recommended that students take at...
  • The Essay Writing - HCC Learning Web

    The Essay Writing - HCC Learning Web

    A RecursiveProcess. Writing is also a recursive process. This means that you repeat the steps over and over again, though not necessarily every step,every time.
  • Collier County | Florida erprise Asset Manageme Concept

    Collier County | Florida erprise Asset Manageme Concept

    PAS 55 "Systematic and coordinated activities and practices through which an organization optimally and sustainably manages its assets and asset systems, their associated performance, risks and expenditures over their life cycles for the purposes of achieving its organizational strategic plan."
  • Aims on 3D TV -

    Aims on 3D TV -

    Multiview auto stereoscopic display. Holography images. holographic movies. Volumetric displays. parallax displays. multi projector. Holography images.. Helographic images.. Parallax dispalys. 3D Display . Application of 3D TV . IMAX screen . OMNIMAX screen . Advantages & disadvantage of 3d tv..
  • Snímek 1 -

    Snímek 1 -

    Nezůstávejte při čtení v posteli, pohled na budík by vás mohl stresovat. Do postele běžte opravdu unaveni. Suchá pokožka Vysoušení pokožky může být způsobeno ústředním topením a přetopeným prostředím. Dr. Paul Griffiths radí umístit na radiátor nádobu s vodou a...
  • Ready-2-Zoom: Scaffolding to Maximize Student Learning 3-7 (Th)

    Ready-2-Zoom: Scaffolding to Maximize Student Learning 3-7 (Th)

    What is Instructional Scaffolding? "Instructional scaffolding is a process through which a teacher adds supports for students in order to enhance learning and aid in the mastery of tasks.