Diabetesomvårdnad - Vad vet vi, och vad vet vi inte

Diabetesomvårdnad - Vad vet vi, och vad vet vi inte

Preserving Sense of Self amongst People with Alzheimers Disease at the End of Their Lives ving a Sense of Self amongst People with Alzheimers Disease at the end of their

Astrid Norberg Ersta Skndal University College Ume University University in Troms De-mentia

Without soul (mind) (Jenkins & Price 1996) Unbecoming (Fontana & Smith 1989)

De-selfing (Harrison 1993) Dementia disease

is a threat to sense of identity Lucid moments Remembers Understands

Cares (Normann et al 1998) Human being Person with dementia

disease How can we help a person with AD?

Subject Self Person Subject

Pain Pleasure Grief Meaning Difficulty localisating,

interpreting and expressing feelings (Buffum et al 2007) Who am I?

Personal identity depending on memory (Parfit 1971, 1984)

Harrs theory Identity (Self 1, Self 2, Self 3)

Self 1 My perspective Anchored in body, place and time, I wish, I feel, I

think How can we help the person with AD?

Meeting as a You Body I see you

I hear you I touch you I speak to you Preserved

sense of Self 1? Embodied indentity (Kontos 2004)

Communicati on through body Self 2 My

knowledge about myself My history My characteristics

My opinions etc. Self-biographical memory where we were born, our

opinions etc. (semantic) special episodes (episodic) (Westmacott et al 2004)

Life history Semantic memory Episodic memory Implicite memory Memory of

childhood and early adulthood (Addis &Tippett 2004) Keep history

Recall Recognize Emotional tone Interpretation based on

memory with the same emotional tone I Me (several)

Personal me Spiritual me Social me Material me Moral me Ethnic me

God Dead Objects

Self Nature Others

Activities How can we help a person

with AD? Amnesia Agnosia Apraxia Aphasia

etc. God Dead

Objects Self Nature

Others Activities Self 3 I as treated by others

The partner co-creating We co-create

each others How can we help a person

with AD? Communicati on Relationship (Normann et al 2001)

Confirmation Dignity Significance Subject Self

Person Person Rights (dignity,

information, konfidentiality, decision) How can we help a

person with AD? Adapt to the persons ability

Person THEN Person NOW God

Dead Objects Self

Nature Others Activities

Possible selves What What What

you you you (Cotrell & Hooker 2005)

wish to be fear to be can be Preserve self

Not show deficits Show Subject Self

Person Experienced by self Observed by others Expressed by self Expressed by others

Intended by self Interpreted by self Human being Person with dementia disease

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